Special report by Dr François Faurisson [François Faurisson manages the EurordisCare programme]
Rare diseases are often chronic, progressive, degenerative, life-threatening and disabling. Many rare disease patients are denied their right to the highest attainable standards of health and continue to advocate their need to overcome common obstacles. In the book “The Voice of 12,000 Patients,” EURORDIS provides eye-witness accounts. The book goes beyond patients' anecdotes to compare the...