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Europe Daily Bulletin No. 10030

1 December 2009
Contents Publication in full By article 15 / 34
GENERAL NEWS / (eu) eu/health
EURORDIS calls for working group to conduct scientific assessment of orphan drugs

Brussels, 30/11/2009 (Agence Europe) - Pointing out that many patients suffering from rare diseases do not have access to the orphan drugs which could save their lives, EURORDIS, the organisation representing such patients at European level, has just sent the European Commission a range of proposals to reduce delays in effective marketing and reimbursement of new treatments. In line with experts on the area of orphan drugs and with the industry, EURORDIS proposes that, within the European...

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