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Europe Daily Bulletin No. 9941

14 July 2009
Contents Publication in full By article 18 / 36
GENERAL NEWS / (eu) eu/health
On basis of European database, Orphanet, international classification of rare diseases is on its way

Brussels, 13/07/2009 (Agence Europe) - Underway for about one year now, revision of international disease classification should be concluded in 2014. To date, out of the 12,000 diseases listed, only about 250 rare diseases have had a specific code, says Dr Ségolène Aymé, entrusted by the World Health Organisation (WHO) to head the working group on these diseases. On the strength of experience acquired within the framework for developing the Orphanet database, Séglène Aymé, who manages...

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