Brussels, 18/11/2014 (Agence Europe) - During its third meeting on 12-13 November last, the European Commission group of experts on rare diseases adopted a recommendation on improving the codification of rare diseases in healthcare systems. This recommendation criticises the lack of data on rare diseases resulting from the different ways in which lists are made at a national level. The group also discussed the introduction of European Reference Networks (ERN) in the European directive on...